Articles
Multiple sclerosis expert patient program in Central America: changes in quality of life and lifestyle habits (2025)
Study evaluating the impact of an expert patient program in people with multiple sclerosis in Central America. The results show improvements in quality of life and in habits related to self-care and lifestyle, highlighting the value of structured psychoeducational interventions.
Health-related quality of life in 153 children with neuromuscular disorders in Latin America: is it age, functional dependence or diagnosis? (2024)
Multicenter study in Latin America analyzing health-related quality of life in 153 children and adolescents with neuromuscular disorders. The findings indicate that age and level of functional dependence significantly influence quality of life, while the specific diagnosis did not show relevant differences.
Argentine consensus on the transition from pediatric to adult care in patients with congenital metabolic disorders. (2023)
Consensus document that establishes recommendations to optimize the transition process from pediatric care to adult care in patients with inborn errors of metabolism, adapted to the Argentine healthcare context.
The role of the psychologist in the care of people diagnosed with a rare disease. A theoretical review from the perspective of health psychology. (2021)
Theoretical review that analyzes the role of the psychologist in supporting people with rare diseases from a health psychology perspective, highlighting the psychoeducational approach and the emotional support provided to patients and families to promote adaptation and well-being.